Ok we went back to see Dr. Waseem on May 14th to get Lilly's latest test results.
Her blood work shows she doesn't have all the things they tested for such as catscratch fever, everything came back negative and she is still showing high inflammation levels in her blood work.
Doctor thinks the stomach pain she has been having for the past few weeks is due to Motrion upsetting her stomach and has given us a perscription for Zantac, also we are giving her stool softener to keep things moving and will have a follow up X-ray of her belly this week and see if there is still a blockage, also we will be another ultrasound of her neck to see how the lumps are, if there is any change in size. He did say it's possible she has celiac disease and it's just presenting differently, he will decide if we need to see a GI doc after her reviews her test results.
The doctor is not sure what is going on with Lilly, but he is not giving up and will continue looking, researching and testing.
We will see him on the 28th and go over her test and see if we will biopsy sooner or later...
David and I have decided that we need to be proactive in getting Lilly better and if the possiblity of celiac disease is there... we have decided to change her diet (the whole family will do it too) to a vegan, gluten and sugar free diet. Doing this will also remove foods that can cause inflammation in the body and add good foods that will reduce inflammation.
We are also trying to figure out how to get a second opinion, we don't have a diagnosis, but feel it would be a good idea to have another doctor look over all her test and check her out and see if that doctor might have other ideas...
Problem is our insurance will not cover a second opinion outside of Las Vegas and the only one oncology hematology center in Las Vegas!
So we will have to look into how to get the funds together to cover the cost ourselves.
Ok I will update y'all more soon!!
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