ENT visit

We saw the ENT (ear, nose and throat) doctor today, he was a very nice man.

I went over Lilly's complete medical history starting from over a year ago when she got her first throat infection and started getting the lumps in her lymph nodes. We reviewed the antibiotic's that she has taken during this year and were told that she might be immune to amoxicillin now because she has been prescribed it so many times for her throat infections.

Due to the number of throat infection she has had she does qualify to have her tonsils removed, but at this time the ENT doc will not remove her tonsils.

The reason the doctor will not remove her tonsils at this time is because 1. She has an undiagnosed autoimmune disorder that could cause her to have difficulty healing from the procedure and 2. Due to her condition she is at a higher risk of complications during surgery and the possibility of death.

So we agreed with the doctor that she will not have her tonsils removed until we have a diagnosis and then we can discuss the risks of doing the procedure , if it will even be needed after we find out what's going on with her.

The ENT doc did ask us to have Lilly tested for diabetes and lupus. I let him

Know that she has been tested for lupus and has come back negative, but I had no idea if she has been tested for diabetes so I will ask her doctor to test her.

The ENT doctor also referred us to a immunologist, to have her looked over and see if the immunologist can find an answer to what's going on with her. Oh yeah another doctor visit.. Wee fun!!

Tomorrow we are taking Lilly to Dr. Waseems office to have blood work done, he is testing her for a Periodic fever Syndrome, as well as checking her ANA and after I emailed him about what the ENT said he informed me she has test negative for lupus (which I knew) and that they have been testing her glucose all this time and it has been fine, but just to be sure he will do HgA1C test that will show if she has been having diabetes issues. It was very nice of him to do that just to double check. 

After that we head over to the Sleep study office to get all our pre-sleep study stuff in order and set a date to do the sleep study. Should be a very busy day... 

Oh and it's My husband David and I 10 year anniversary, let hope we (just him and I) will get a chance to go out and celebrate! lol!! We have been together for 15 years and married for 10, it such an amazing thing, I love him more and more everyday!

All of us waiting over an hour to see the ENT!! UGH!!