Ok sorry for the delay in updating everyone... we have been very busy!
On Sept 23rd we saw Dr. Waseem, thankfully Lilly didn't have to have any blood work done. We went over her recent visits to the Cardiologist and Infectious Disease Doc and the results, we talked about Lilly getting sick again and the fact that she is having chronic stomach pain that is not gotten any better with the medications he has prescribed. Her new sensitivity to light that is causing headaches and that the Infectious Disease Doctor suggested we should consider having Lilly's tonsils removed.
Dr. Waseem agreed that Lilly should see an ENT (Ear, Nose, Throat Doctor) and also asked us to see an eye doctor to see if the inflammation in her body is damaging her eyes and he also wants her to see a GI Doc about her tummy as he feels that maybe she has Celiac Disease (where your body gets sick from Gluten), he thinks this is a good possibility and she just presented differently. He will see Lilly again in November and he will do blood work then to see how her ANA levels are doing.
The next day Sept 24th we saw the Neurologist, we went over all the results and he found that there is nothing to indicate a Strep Throat complication. He wants to have a sleep study done on Lilly to see why she is so lethargic. He will also continue monitoring Lilly,we will see him again in December. If Lilly gets worse he would like to start her on Steroids (low dose) to reduce the inflammation in her body, if that isn't working then he wants to do the IVIG (explained in an earlier post), but only if she is worse and steroids don't work.
So we are going to see the ENT on October 8th, Sleep Study Doc on October 9th, GI Doc on November 25th (on a waiting list for any cancellations to get her in sooner.
We saw the eye Doc on Sept 30th and everything looks great, she has a condition where her eyes are very sensitive to light, the treatment is very dark sunglasses, LOL hey that's easy... But otherwise she has great vision and no problems. She will need a follow up in 6 months because of her high inflammation levels they want to monitor her.
Photos from her Eye check up..
On Sept 23rd we saw Dr. Waseem, thankfully Lilly didn't have to have any blood work done. We went over her recent visits to the Cardiologist and Infectious Disease Doc and the results, we talked about Lilly getting sick again and the fact that she is having chronic stomach pain that is not gotten any better with the medications he has prescribed. Her new sensitivity to light that is causing headaches and that the Infectious Disease Doctor suggested we should consider having Lilly's tonsils removed.
Dr. Waseem agreed that Lilly should see an ENT (Ear, Nose, Throat Doctor) and also asked us to see an eye doctor to see if the inflammation in her body is damaging her eyes and he also wants her to see a GI Doc about her tummy as he feels that maybe she has Celiac Disease (where your body gets sick from Gluten), he thinks this is a good possibility and she just presented differently. He will see Lilly again in November and he will do blood work then to see how her ANA levels are doing.
The next day Sept 24th we saw the Neurologist, we went over all the results and he found that there is nothing to indicate a Strep Throat complication. He wants to have a sleep study done on Lilly to see why she is so lethargic. He will also continue monitoring Lilly,we will see him again in December. If Lilly gets worse he would like to start her on Steroids (low dose) to reduce the inflammation in her body, if that isn't working then he wants to do the IVIG (explained in an earlier post), but only if she is worse and steroids don't work.
So we are going to see the ENT on October 8th, Sleep Study Doc on October 9th, GI Doc on November 25th (on a waiting list for any cancellations to get her in sooner.
We saw the eye Doc on Sept 30th and everything looks great, she has a condition where her eyes are very sensitive to light, the treatment is very dark sunglasses, LOL hey that's easy... But otherwise she has great vision and no problems. She will need a follow up in 6 months because of her high inflammation levels they want to monitor her.
Photos from her Eye check up..
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