Seriously!!

Yesterday we took Lily to see Dr. Waseem and have her blood drawn, the test that is being performed is periodic fever panel, ANA levels, HgA1C for diabetes and took urine as well. She did wonderful with the blood draws usual we are always so proud of her.

After that we had a sleep study appointment, this is just the check up and review of history before the sleep study is done. I spoke with the doctor about how lethargic she is during the day that she tosses and turns during the nights and doesn't seem to get a good rest.

He then performed an examination of Lilly  and upon looking in her mouth and checking out her throat he proclaimed he knew why she is not sleeping well, he stated that her tonsils are large so large that they are actually touching each other and need to be removed immediately. Once her tonsils are removed he said that all her symptoms would go away and should be much much better!! He said he didn't even need to do the sleep study to know that she has sleep apnea due to her tonsils being so enlarged.

I went on to explain to him that we had seen the ENT the day before, and the ENT will not remove her tonsils due to her undiagnosed autoimmune disorder and the risks. The sleep specialist said he would contact the ENT and tell him this must be done, her health is at too great a risk to not have it done, she could stop breathing permanently, she can have kidney complications and so on, he was very adamant that she must have them taken out and that she will improve so fast. 

So this is what we are facing now, ENT says its to risky and Sleep doc says its too risky not to!! Ugh seriously!!

David and I have decided to talk to Dr. Waseem and ask his thoughts and ask him to talk to the ENT so he can have a complete understanding of Lilly's condition and then consider the risks.