Lilly

Lilly

Thursday, February 6, 2014

The results part 2

I was able to get an appointment for us I see her pediatrician David Budge for the 6th of Feb. When he walked in my son Logan said to him, yeah we are seeing you a lot huh!? He doctor smiles and said yeah I'm sorry for that, he then turned to me and say the most amazing thing, he apologized for not being the one to give us the results and how he wanted to be hear for us. I explained to him that, that is why we were here, the asshole doctor didn't tell us anything and she is still sick. I had brought in the lab work and ultra sound results and he sat down and went over each thing that was off one by one. 
He was concerned with he results because... 

1. He blood sugar was a little high but not bad, could be because we didn't fast before the test, so not to worry its nothing serious.

2. She is anemic, this is strange.. But not uncommon, but when you put that with the "bands" result it made him more concerned. 

3. The biggest concern is her "bands" I will put a link in explaining in more detail about what bands are, but here is the short version. Her bands are high and that's not good, bands are "baby cells that develops in the bone or spine I think he said, they are not mature yet, the grown and then they are ready to fight infection, but these baby bands are in her blood and trying to fight something" she doesn't have a virus and the antibiotics didn't make her better or the bands would go to normal. He whispered to me "cancer" so Lilly wouldn't hear, it's a sign plus with the anemia. He told he he wanted to try just one more course of antibiotics in the hopes it's a staph infection that is antibiotic resistant. It's a strong one and we have to watch her closely for a reaction.

He then told me that he is putting in a referral for us to see a Hematologist-oncologist (meaning a blood cancer doctor) and he wants us to so a cat scan of her neck. The ultrasound showed it was large and shapped in an oblong (not normal) but it doesn't tell then what is inside and a cat scan can give us more details about the lump on her neck.

I love David Budge for taking all the time in the world for us and to me that if we need anything to speak directly to him and only see him. He is a good man and Lilly really likes seeing him.

Side note... When he check her throat he said it still looked infected and would assume a strep throat if he saw this in another child, but with her history he knows there is something going on. He requested that after she has been on the new antibiotics for a few days we are to do the blood test to see if the antibiotics are working.


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